Welcome to Dreams for Emily.

2008-2009 was a happy time for our family. Our eldest child, Melissa, was 14 years old, and our son, Michael, 12, were getting ready to welcome their two baby sisters to our family. At 5 1/2 weeks into the pregnancy, we were overjoyed to learn we were expecting twins. Amidst the excitement, we navigated a high-risk pregnancy with care from a specialist at St. Elizabeth’s Hospital in Boston.

An amniocentesis, taken as a precaution, revealed that Emily, our Baby A, had a chromosomal anomaly on her 15th chromosome, prompting a consultation with a geneticist. Choosing to focus on the joy of our growing family, we didn't dwell on uncertainties. The pregnancy progressed well, and on March 18, 2009, we welcomed our beautiful twins: Emily, followed by Kimberly two minutes later, both healthy.

When Emily was 3 months old, we noticed she wasn't reaching her developmental milestones, prompting a visit to her geneticist at Boston University School of Medicine Human Genetics. That was the toughest day of our lives, we received her diagnosis of Isodicentric 15 or IDIC 15. When you realize your baby is “sick” and will never get better, you have so many questions and emotions. That was the day our lives changed forever.

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